Hi, My name is Lynda. I wrote the first part of this in 1997 When my son Wes was 5 1/2. He has grown so much! But there are some things that I wanted to add to this! So many feelings that I had not yet encountered! So at the end you will find a new part of the "real world!" Thank You.....
I want for you to put yourself in the shoes of
the parent of a disabled child.... *smiling*
Yes... It is very difficult to imagine isn't it?
Well for many people across our country
and around the world, this it daily life!!!!
Think of what that means!!! You already
know how hard it can be raising children !
But try to imagine raising a child who has
special needs.... There are countless hours
of therapy...not necessarily at an office...
although it can include that! But at home it
is a daily routine. Simple things like going
to the store... for some is a major deal! If
the child is severe it can mean needing to
find special care (called respite care) OR
loading special equipment into a special
vehicle...and enduring rude comments and
stares! Simple things like a dentist
appointment for most is no longer simple! It
can mean a trip to out-patient surgery for
even a normal check-up and cleaning. Life
becomes a merry-go-round of Doctors,
Therapists, Special Education, and Paper
work! Not to mention trying to explain
things to people including family and
friends that you barely understand yourself!
Your goals in life change drastically!
Suddenly it is no longer what a child's
grades are that are important! It can be as
simple as will my child learn to read and
write? Will he speak? Be able to eat regular
foods? Or will he need specially pre-pared
food or even have to be fed through tubes...
Many times thoughts finding that perfect
College are replaced with thoughts of
finding that perfect Group Home... Yet.....
There are also MANY, Many rewards!!!!
You start learning so many wonderful
things about life that as adults we have
forgotten! That the simple joys and
accomplishments give so much more to us
then what money can buy! You find yourself
seeing the world and people in it in a whole
new light! And begin judging not by what
people can't do or don't have but by what
they can do and what they do have! Over-all
parents of the disabled become a more
loving, charing group of people!!! How do I
know this?...... My son is one of the
disabled! I have been blessed in life and so
has every person his life has touched! And
This Homepage is dedicated to him! Wes ...
you have made my life complete!!!! every person his life has touched! And This Homepage is dedicated to him! Wes ... you have made my life complete!!!! August 2000
Hello again! I wanted to add this part because Wesley is now at an age and stage that he does realize that he and his life is "different". It may not be accepted to word it in that way.... But there is no other way I can think of to say it. His life is not that of the typical child who is going on 9 yrs old and going into the 3rd grade. Wesley is just now starting to read a couple sight words.... he talks ....but his speech is not easy for other people to understand and even for me at times. He has no "friends" beyond family members. He knows that other kids have friends. He is treated differently a lot with out people really meaning to. there are times he can not go places that other kids could with out me there because it is not safe. He does not have the understanding of some safety issues. Wesley is incontinent and has to have enemas every 3 days. He really doesn't like this.... but knows he has to have this done. He takes medication... fiber....vitamins.... and still keeps being very happy most of the time! Wesley has retained an innocence that is usually mostly gone by his age. Wesley has learned to do so many things! He is very good with computers, and has started using the internet with supervision and some help! this has given him the ability to see that he is not the only kid out there that is special! I am working on getting him a lap top that he can use to help him communicate with other people using a picture/word processor. That will give him so much more freedom! Right now Either myself or another family member must help other people be able to understand what he is saying. It will take time but eventually this will allow for him to meet more people, make friends and be independent! Given the tools he can and will be more independent! I hope for him to have the best possible future and for him to go as far as he can! Have a wonderful night!!!!
Use the above graphic on your page to show your support of the Silver Ribbon Campaign!
The Silver Ribbon Campaign is a grass roots effort started by members of the Our-Kids Mailing List. Our-Kids is a mailing list for professionals, friends, and family members of children with disabilities. Most members thought it was important to find a way to identify individuals, both in the community AND on the Internet, who are interested in promoting awareness and support of children with disabilities. Anyone who is interested in the cause may wear or display a ribbon on their website. We want as many people to be aware of the special needs of children with disabilities. The ribbon is similar to other ribbons you may have seen for various causes. It is silver or grey satin, about 1/4-3/8" wide, and is folded to make a loop.
©4/98 Lynda Romero
Last updated July 2003